Dearest Darlingest Momsie and Popsicle

Although there hasn’t been any confusion over rooming at Shiz, and I haven’t yet seen Wicked in London[1], this week did bring a lot of excitement with thoughts of Momsie, Popsicle, and other family things. 

Last Sunday (March 15) was Mothers’ Day in the UK. After I finished my slight panic that I had somehow missed the whole month of April I learned that, although marketed quite similarly, this “Mothering Sunday” [2] is not associated with the US version of the holiday.  The priest at St Etheldreda’s Parish cleared this up during his homily and also connected this to the 21st C rendition of giving special thanks to our earthly mums as well as Mary, Mother of Jesus.

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St Etheldreda’s Parish, the oldest Roman Catholic church in London. Read more about it at: http://www.stetheldreda.com

We happened upon the Latin mass (far more common here in London than it is back home in the US) complete with choir and string quartet. Music included Eberlin’s Missa brevis in a, Palestrina’s Laudate Dominum, and (holiday appropriate) Johann Michael Haydn’s Ave Maria. As my mom likes to say, this is what I imagine heaven will sound like. 🙂

On Wednesday evening, after heading to Westminster Cathedral for daily mass, my cousin and I realized we were again celebrating a special feast– St Joseph’s Day.  Although this might make us sound like rather clueless Catholics, this was actually a vigil feast for St Joseph whose feast day is celebrated on March 19. We were again accompanied by beautiful music (this time organ + all male choir) and this time reflected on the gift of dads.

Westminster Cathedral

Westminster Cathedral

Although the mass ran longer than anticipated, we still had enough time to make the English Chamber Orchestra concert at Cadogen Hall (where I attended Joshua Bell’s performance this fall). This opened with Beethoven’s Leonora, featured an Italian soloist (Gloria Campaner) on Schumann’s piano concerto, and closed with Mendelssohn’s Scottish symphony. I don’t know that I’ve ever had such an excellent view of the stage– I could trace the musician’s eye contact and even follow the music on the last stand of cellists. Such a treat!

Following along with the last stand of cellists :)

Following along with the last stand of cellists 🙂

I also had a few good reminders of the significance of grandparents in recent weeks:

(a) Pope Francis’ address when I was in Rome: “We continue our reflection on grandparents, considering the value and importance of their role in the family. I do so by placing myself in their shoes, because I too belong to this age group. When I was in the Philippines, the Filipino people greeted me saying “Lolo Kiko” — meaning Grandpa Francis — “Lolo Kiko”, they said! The first important thing to stress: it is true that society tends to discard us, but the Lord definitely does not!… (Continue reading at the Vatican website.)

(b) The recent Social Science, Health, and Medicine seminar lecture on “Grandparenting in Europe and the Health Impacts of Caring for Grandchildren” presented by KCL’s Professor Karen Glaser (who coincidentally has ties to University of Michigan!)  There were a number of really interesting (and quite nuanced) findings discussed. ie: Caring for grandchildren on a ‘part-time’ basis (~15 hr / wk) has positive effects for grandparents’ health and well-being. The research has the potential to shape policy for work /retirement / compensation plans for the ever-growing older population. Since I’m looking at this with younger eyes, I’m curious to see if this could impact decisions around maternity / paternity leave as well as suggested work hours for working mums and dads. (Read more on the Grandparents Plus website.)

(c) Letter writing with my own grandparents. 🙂

The Valentine letter I received. Included an interesting WSJ article about med schools. :)

The Valentine letter I received. Included an interesting WSJ article about med schools. 🙂

Sometimes I’m pretty dense, so with just these occurrences this post may not have developed like this. But alas, I also saw Matilda, a special West End treat that I’ve been saving for viewing with my cousin Cecilia and her housemate Hailey.  (So glad the rush tickets worked out– we were the last few in queue to receive the special £5 student rate!!)

Cici & Hailey

Cici & Hailey

I hadn’t refreshed myself on Matilda’s plot since I watched the movie and read the book in grade school, but even if I would have, the theatre version deviates a bit from this. For example opening number “Miracle” features the soloists in the children’s Chorus each singing how “my mummy says I’m a miracle / my daddy says I’m a special little guy” regardless of whether they are acting sweet as angels or throwing tantrums at the moment.  This is juxtaposed with Matilda’s mother, shown at the hospital inquiring why she has become 9 months “fat” and whether or not it can be fixed before her dancing competition that evening. The doctor has the ‘joy’ (responsibility) of informing her of the situation:

DOCTOR
You’re nine months pregnant!

MRS WORMWOOD
Antibiotics, or . . . Oh, my good Lord! What about the Bi-Annual International Amateur Salsa and Ballroom Dancing Championships?

DOCTOR
A baby, Mrs Wormwood. A child. The most precious gift the natural world can bestow upon us has been handed to you. A brand new human being! A life. A person. A wonderful new person is about to come into your life to bring love, and magic, and happiness, and wonder!

MRS WORMWOOD
Oh, bloody hell!

DOCTOR
Every life I bring into this world
Restores my faith in human kind.

Each newborn life a canvas yet unpainted,
This still, unbroken skin,
This uncorrupted mind.

Ev-er-y life is unbelievably unlikely.
The chances of existence almost infinitely small.

The most common thing in life is life . . .

And yet every single life,
Every new life
Is a miracle!
Miracle!

MRS WORMWOOD
This is the worst day of my life! [3]

The audience watched with wide-eyed silence. No nervous or obligatory laughter. In fact, the applause at the end of the scene (where Matilda first enters to sing that her parents say she is “a lousy little worm”, “a bore”, “a good case for population control”…) was even a little hesitant as if the mums & dads were questioning whether or not it was a good idea to bring their little tykes to the theatre.

One might argue that this is theatre at it’s best! Inviting the audience into the world on stage!

Perhaps. But it would also make an good topic for a Bioethics lecture or dissertation: how are topics relevant in bioethics (ie: reproduction, pregnancy, child-birth) represented in popular culture or fictional literature? How do these representations impact our understanding of bioethics in ‘real life’? Some suggest that the provide us with warnings (ie: when I mentioned the Island when thinking about Maternal Spindle Transfer.) But we also hear suggestions that we are rather un-impacted by these sources: ‘those are clearly science fiction’ or ‘creating a Gattaca-esque world is not on our radar’, etc.  I already have my final papers in motion for the rest of the year, but this might fuel some free-time reading.

ASB

PS: In Christian traditions, today is Palm Sunday– the beginning of Holy Week, the holiest time in the Church calendar. It’s admittedly an odd thought that I’ll be apart from my family during this time, but celebrating in London presents a unique opportunity beginning with sung mass this evening at St Mary’s in Chelsea. Furthermore, I feel incredibly blessed to be welcoming my boyfriend Ben Brelje to London on Maundy Thursday and then greeting my sister Gretchen and dear friend Joan Campau right after the Octave of Easter is finished.  Very much looking forward to playing hostess, but this also means that I’ll be taking a break from writing for a bit. To keep the blog going in the mean time, I’ll try to prep some exclusively picture posts from earlier adventures that I haven’t been able to publish yet.  So as Grandma Berkemeier taught us, to be continued… xx

Footnotes:

[1] One of my favorite musicals!  But since I’ve seen it before in the States, it isn’t as high on my list as other performances.

[2] If you’re unfamiliar with this 4th Sunday of Lent holiday like I was, you can read a quick history on Wikipedia.

[3] I removed some parts of the script for reading purposes. Feel free to check out the whole thing HERE.

Featured Image: Stumbled upon Geraldine Street on a chilly walk back from Vauxhall. This is a toast to the lovely Geraldines in my life: Grandma (Geri) Gaydos as well as the coolest kid sister (Gigi) anyone could ask for. 🙂 Love you both!

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Roma, Italia

Last week I had the incredible opportunity to participate in a medical ethics conference hosted by University of Notre Dame Center for Ethics and Culture at their Rome campus. As you may recall, this is the second year that I have been able to attend this medical ethics conference.  I had a bit of deja vu returning to the conference that helped fuel my desire to study bioethics, and more broadly, healthcare from the perspective of the humanities. To be fair though, this had a much different feel since we were just a block away from the Colosseum. 😉

I was impressed with how far I have progressed in my understanding of medical ethics in a year’s time.  Don’t misunderstand this as me thinking I’ve got it all figured out. Far from it! But I much better understood the language of this field and have become a bit more comfortable making bioethical arguments.  I guess my studying is paying off. 😉

I could write a book about what I have taken away from the conference discussions and then fill a few other volumes about tasting delicious Italian food… (click for enlargements + captions)

 

 

…strolling through beautiful museums, piazzas, and villas…

 

…standing in awe as a pilgrim in Rome (and Vatican City)…

 

…but I might have to drop out of my master’s program in order to make time for that. Instead, I present to you a snapshot at the intersection: is spirituality relevant to healthcare, medicine, and the understanding of bioethics?

This sends me back a few weeks ago when I was invited to speak to KCL’s Life Society about palliative care. From their website:

“We exist because universities are important spaces for the exploration of ideas and opinions, and it is important that the Pro-Life voice is heard on campus. Our message is a positive one, it is not about shaming or blaming, it is about discovering the beauty of human life, and protecting it.”

To be honest with you, I was pretty freaked out: why are you asking me?  How am I qualified to speak? To which the student in Life Society replied rather straightfowardly: You study bioethics right?  And you’re going into medicine? Seems like you would have a better idea about the topic than any of us!

It is amazing how much you can learn when you have to ‘teach’. I didn’t just want to speak on my own authority since, despite her encouragement, I honestly didn’t think I had much authority at all. In search of good reference material, I consulted a voice for whom I have profound respect, Ed Pellegrino, whose name I was introduced to little better than a year ago and whose literature continues to be a source of guidance in my study of bioethics.

Though I wouldn’t do justice to ‘summing up’ Pellegrino’s philosophy in a blog post, a central aspect is that:

Cure may be futile, but care is never futile.

The optimal end of healing is the good of the whole person– physical, emotional, and spiritual. The physician, manifestly, is no expert in every dimension. He or she, however, should be alert to the patient’s needs in each sphere, do what is within his or her capabilities and work with others in the health care team to come as close as clinical reality permits to meeting the several levels contained in the idea of the good of the patient. [1]

Considering the fact that a patient’s physical condition often provides the trigger to visit a doctor, it follows naturally that doctors have a reputation of focusing on the physical aspects health. Sometimes they are so focused though, that the patients’ emotional and spiritual needs are forsaken.  Although this applies to all aspects of medicine, I think it is particularly relevant to healthcare at the end-of-life which provided a good framework for my talk with the Life Society. It was also helpful for the conference last week where the keynote lecture was about international perspectives on the euthanasia debate… AND this week’s topic in my Case Studies module: “Ethics at the end of life– the biopolitics of dying.”

This post would get out of control if I tried to summarize all of the points relevant to this topic, so instead I’ll leave you with some important questions that I’ve been mulling over:

  • Does care change when cure is futile? Should it change? How so?
  • Aquinas’ Doctrine of Double Effect is often cited as a reason to prohibit euthanasia. Is there really a difference between [a] giving medication to a person that is intended to give them comfort but has a foreseeable outcome of shortening his life and [b] giving medication that has the intended effect of shortening his life? If there is a difference, how should this inform our ethics and legality of end of life care?
  • Conversations about emotional components of health (and even more frequently, spiritual components of health) are often omitted from clinical encounters. How does this effect patients’ care?  Should physicians be responsible for providing this care? If yes, in what capacity? If no, who (which member of the health care team) would better be able to provide this care?

Until next time,

A

[1] If you have access to a university library or other collection of journal articles, I highly recommend reading this full article! –> Pellegrino, E. (2001). The Internal Morality of Clinical Medicine: A Paradigm for the Ethics of the Helping and Healing Professions. The Journal of Medicine and Philosophy, 26(6), pp.559-579.

Featured image: St Peter’s by night